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STOP TB USA was founded as the
National Coalition for Elimination of Tuberculosis (NCET) in
1992. At that time, the TB cases were increasing in the U.S.
and there were outbreaks of multiple-drug resistant (MDR) TB.
NCET was organized to address
this failure of domestic TB Control. There were 58 founding members
(83 individuals) from public health, health care, professional
medical organizations and Congressional Health committees concerned
with the care of individuals with tuberculosis or its control.
Goals
To serve as a channel of scientific and public health knowledge
for the public and policy makers on the status of tuberculosis
elimination globally, nationally and at state and local levels;
To educate the public and policy
makers about the need for sustaining community public health
activities for the elimination of tuberculosis, including development
of new tools;
To provide a framework
for increasing community participation in the national tuberculosis
elimination effort, with emphasis on building awareness in and
participation of at risk populations;
To bring partners together with a clear agreement
on the shared objectives for eliminating tuberculosis in the
United States; and
To stand with
our colleagues in the effort to eliminate tuberculosis globally.
Membership:
o Inclusive (not
exclusive) membership of individuals and organizations interested
in TB care and control.
o Organizational Members
or Partners (See "Partners Directory" page on this
website):
o Individual members (See
list at "Join STOP TB USA" page on this website.)
o There are NO membership
fees
o Every member of the Coalition
is eligible to participate in coalition activities
o Annual meetings are held
at the same time as partner meetings. (Next meeting June, 2009
with National TB Controllers Association annual meeting.)
Accomplishments
Creation of public-private
partnerships
o Developed
new advocacy partnerships
o Developed
of new leadership
Governance
The coalition's governance
includes 2 officers (a Chair and Chair-elect) and a steering
Committee consisting of the officers and 10 members from general
membership. The coalition is convened and administered by the
American Thoracic Society which covers basic meeting expenses,
advocacy, conference calls and the executive director's administrative
and travel expenses.
Chair: David DeBiasi E-mail:
ddebiasi@lungva.org
Chair-Elect: Dr. John Bernardo E-mail: jbernard@bu.edu
Executive Director: John Seggerson E-mail: jseggerson@tbcoalition.com
Telephone: 202-494-2448
Steering Committee
Steering
Committee includes the Chair, Chair-elect, 10 members from general
membership, plus ex officio members from the American Thoracic
Society, (STOP TB USA convener), CDC Division of TB Elimination,
the American Lung Association, National TB Controllers Association,
and the National TB Nurse Consultant Coalition.
*
Bylaws (link to Bylaws webpage)
*
Summaries of Advisory Council
for Elimination of Tuberculosis (ACET) Meetings
NATIONAL COALITION ACTIVITIES
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Founded in
1992. Created a venue for Public Private Partnerships. |
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Introduced unlikely
partners for advocacy with initial funding from RWJ Foundation-supported
staff, travel, and meetings including the TB Research Scholar
Program which eventually led to the development of the NAR meeting |
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Developed new leaders
within the TB community |
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Benefited from the
synergy created by like minds meeting for the first time |
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June 1997 NCET survey of Membership
o 92% of
members agreed there was value to continuing NCET
o Original
goals reaffirmed with emphasis on advocacy |
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November 2002
NCET Membership Meeting
o Reorganized
NCET with new goals aimed at implementing IOM Report recommendations
o Developed
new bylaws and governance structure |
THE CHANGE
FROM NCET TO "STOP TB USA
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August 2007 Retreat
in Atlanta of Coalition Leadership/CDC/Advocacy Partners:
o Voted unanimously
to transition the "NCET" Coalition to "Stop TB
USA"
o Recommended
retention of original NCET goals, bylaws and governance structure
o Recommended
continuation of NCET advocacy & communications |
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Initial task
STOP TBA USA was to undertake development of a Updated TB Elimination
Plan for presentation to ACET:
o Writing
Committee of STOP TB USA partners established to develop the
plan
o Related
Plan "Launch and Advocacy" Committee established |
KEY CHALLENGES
IN THE LAUNCH OF STOP TB USA:
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Mobilize new partners
and ensure an environment in which all partners collaborate to
achieve the goal of TB elimination |
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Continue to address
3 major areas of concern to reach TB elimination |
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The changing face
of TB care and control in the US |
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The challenge of
global TB care and control |
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The need for new
tools |
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Appropriately resources
for Stop TB USA to undertake its challenges |
COMMUNICATIONS
The
NCET WIRE: Quarterly publication,
sent electronically, includes news on funding and leadership
issues, Calls to Action, NCET activities, partner issues/activities,
new educational products, ATS International Conference TB agenda,
and other TB-related meetings.
Special NCET WIRE: A summary of key points from ACET meetings,
highlights of latest news on TB-related public health, scientific,
and resources issues sent after each ACET meeting.
Quarterly Updates on
TB-related News:
To receive the above communications - send an email to jseggerson@tbcoalition.org
GOVERNANCE
The coalition's
governance includes 2 officers (a Chair and Chair-elect) and
a Steering Committee* consisting of the officers and 10 members
from general membership. The coalition is convened and administered
by the American Thoracic Society which covers basic meeting expenses,
advocacy, conference calls and the executive director's administrative
and travel expenses.
Chair: David DeBiasi
E-Mail: ddebiasi@lungva.org
Chair-Elect: Dr. John Bernardo
Executive Director: John Seggerson
E-mail: jseggerson@tbcoalition.com
Telephone: 202-494-2448
* Steering
Committee includes the Chair, Chair-elect, 10 members from general
membership, plus ex officio members from the American Thoracic
Society, (STOP TB USA convener), CDC Division of TB Elimination,
the American Lung Association, National TB Controllers Association,
and the National TB Nurse Consultant Coalition.
Contact Us:
John Seggerson David DeBiasi
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